Pregnancy, Down Syndrome, and Reproductive Rights

Although I usually cloak myself in a filmy, gauzy haze of positivity, sometimes the real world slips through a crack or two.

Did you hear about the YouTube influencers who documented every part of their pregnancy, up to and including their decision to end the pregnancy?

Jesse Ridgway and his wife Ashley ended their pregnancy, and in a series of posts on the YouTuber’s Instagram Stories, Jesse said that they’d recently made the “difficult decision” to end Ashley’s pregnancy after receiving a fetal Down syndrome diagnosis.

“This week, my wife and I made the very difficult decision to terminate the pregnancy due to Trisomy 21,” wrote Jesse. “The choice was not made lightly.”

Down syndrome, also known as Trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21.

It’s usually associated with developmental delays, mild, moderate, or severe intellectual disability, and characteristic physical features.

Since they town-cried their controversial decision, it stirred up a hornet’s nest of the most vicious attacks against them, as well as from those who support them. People are saying he posted publicly so he needs to deal with the hatred. He tried to get attention and make money off of his unborn child. (However, thousands upon thousands of others document their pregnancy too, and for the same reasons.)

“Down Syndrome isn’t a ‘blessing,’ it is objectively s—ty from a health perspective,” Jesse claimed. “I didn’t realize just how rough it is for the child, let alone the family…more often than not, they would be fully dependent on others for the rest of their life.”

After posting about the loss of their unborn child, the couple was flooded with vitriolic comments, with critics calling them “murderous” and “evil”. The Ridgways were sent a “tremendous amount of death threats” from people across various social media platforms who were outraged by their decision. The harassment became so severe that Jesse revealed he put extra security measures in place. In an interview on TMZ Live, he disclosed that the threats were taken so seriously that his wife had to leave their shared home.

From Reddit: I don’t know why people feel the need to give their input on a situation that doesn’t concern them. People need to mind their own business. The commenters are on their high horse acting as if they have such a high moral compass,

Here’s my opinion…

First of all, this is a distraction from the hell that is going on in our country on so many levels, all due to that orange POS.

Secondly...If Jesse and his wife had kept their decision to terminate PRIVATE (or their whole life private), none of this would have happened. I just don’t understand why so many people feel it’s necessary to put their lives on display for impressions, clicks, and income from YouTube and Instagram and all the other social media platforms.

Thirdly… Literally no one LIKES to have an abortion, it’s not like we women throw parties and do gender reveals, but it’s OUR body and our RIGHT to be pregnant or NOT be pregnant and everyone can stay out of my uterus.

Finally...When I was in the teaching program at university, I started out thinking I wanted to major in special education but after doing some student teaching in Special Ed classes and experiencing their special and exhausting 24/7/365 needs, it’s not something I chose to do.

It’s grueling for parents, siblings, teachers, and everyone else. I would not subject a child of mine to merely exist like that. What happens to them when their parents are gone? It’s not a pretty thought.

I don’t think there was as much comprehensive genetic testing back when I was pregnant with my son as there is now, but if my tests revealed a severe genetic abnormality or birth defect, I’d have a lot of thinking to do, mainly about their quality of life–and mine.

Final thought:
Pearl clutchers and virtue signallers and everyone else with their fake martydom can do what they want with their own bodies, but keep their hands, laws, and opinions out of mine. It’s quite literally none of your business. #reproductiverights

Another Happy Solar Return For The Original Angel Boy

…and an interesting and coincidental fact about (of course) Leon Russell.

Eleven years before there was even a hint of a thought about any baby, even one as wonderful as Angel Boy, Leon Russell released his self-titled debut solo album on March 23, 1970.

The album featured the classics: Delta Lady, Dixie Lullaby, A Song For You, Hummingbird, and Prince of Peace.

Leon played piano, guitar, bass guitar, and vocals. He was backed by an impressive list of friends, including Klaus Voormann, Mick Jagger, George Harrison, Ringo Starr, Alan Spenner, Charlie Watts, Bill Wyman, Delaney Bramlett, Eric Clapton, Jim Horn, Bonnie Bramlett, Steve Winwood, Jim Gordon, Chris Stainton, B.J. Wilson, Joe Cocker, and Merry Clayton.

What was I doing on March 23, 1970? I was in high school and I’m sure I bought that album as soon as it came out, probably at The Wherehouse or Licorice Pizza, two cool record stores that no longer exist.

But on March 23, 1981, I debuted MY one and only release of a human–the aforementioned Angel Boy–after twenty-four hours of labor and an emergency C-section. I’ve blogged a lot about the birth: https://enchantedseashells.com/2013/03/23/i-fell-down-and-a-baby-popped-out/

He’s still the same person he’s always been; a voracious reader and writer, loves to garden, is kind to animals. He’s got a wicked sense of humor, and now that he’s a dad, he skateboards with the Angel Kids and finally realizes why I worried so much about his safety.

Could he really be all grown up? Nah, he’ll always be my Angel Boy and I’ll always be the proud Boy Mom.

Photo by Enchanted Seashells

Game Day Confession: I Love Football

There’s an intangible, sort-of-cosmic backstory that might shed a bit of light…

It comes as a surprise to some who think I’m only all about shopping and seashells and being princess-like — when they find out I love football and camping and hiking. It might seem out of character, but I guess I’m a living, breathing contradiction, more faceted and complex than one might imagine.

For the first twenty-five years of my life, I didn’t care one way or another about football (or most sports) until I was pregnant with the one and only Original Angel Boy.

In a strangely illuminated memory, I will always recollect the fall of 1980. I was about four months pregnant and the disabling, extreme morning sickness had FINALLY abated, albeit without almost needing to be hospitalized for Hyperemesis gravidarum, just like Princess Catherine.

On this particular Sunday, I heard the sounds of football in the living room, which meant the San Diego Chargers and Dan Fouts were playing. I finished feeding the dogs or whatever I was doing in the kitchen and sat down to watch the game, drawn to it in a way I had had never been before that exact moment.

I asked question after question, hungering for each and every detail — what was a down or offsides or a running back. I was thirsty for knowledge.

After that day, I became a football fan, not to the point of wearing team apparel, but actually anticipating the next season and whether we’d make the playoffs or not. With the Chargers, it was mostly NOT.

It was that late October day that I knew beyond a shadow of any doubt — I was going to have a boy. It was all that testosterone, I was sure of it! In fact, I bet my doctor that my intuition was right. This was before ultrasounds were a routine diagnostic tool in pregnancy so there was no way to scientifically predict the sex of a baby. If it was medically necessary, I could have had amniocentesis, but that was a slightly risky procedure and not advised simply to win a wager.

However, right after I delivered my perfect boy a few months later, I said to the doc, “I told you so, I told you I was having a boy. I knew it.

In 1994, the Chargers made their first and, so far, only Super Bowl appearance, against the 49ers in Super Bowl XXIX. Of course they lost to quarterback Steve Young and the amazing wide receiver Jerry Rice, but it was an exciting game.

Recently, Angel Boy, DIL, and I were having a conversation about the Seattle Seahawks and why they’re not doing so well this year. When DIL asked a question about quarterbacks, AB and I explained the details of a trade and coaching staff…not only did she have no idea that I harbor an affinity for the game, but she also had no idea that my son STILL, after all these years, had stat after stat stored up in that giant brain of his. She was gobsmacked, as the Brits like to say. It was funny to see her reaction. To me, she said, “How could you like football? It’s everything you hate; crowds and noise!” I told her there was something exciting about the energy of attending a game that was infectious (in a good way), to root for your team. 

As I said, some people are surprised by me! 

Here’s the psychology of it, and since she’s a neuroscientist, these facts appealed to her: Following a sports team can give us a tremendous sense of belonging, even if it comes with a bit of intensity, Much of the enjoyment we get from watching our team can be traced to the feel-good chemical, dopamine. For a short period of time, we are diverted away from personal problems and able to focus on things outside of ourselves.

All these memories are being stirred up because the AFL-NFL playoffs are on Sunday. Nope, the Chargers (in LA now) aren’t playing, but my other hometown team, the Detroit Lions, are in their first playoff game since 1992. At that time, Detroit faced Washington for the chance to advance to the Super Bowl, but couldn’t make it happen.

Until this year, the Lions have gone thirty-one seasons without reaching a championship round or winning another post-season playoff. I hope they win because I like to root for the underdog, but since they’re playing the 12-5 San Francisco 49rs, they probably won’t stand a chance.

The other playoff game is Kansas City Chiefs against the Baltimore Ravens. I don’t have an interest in either team but the frenzy surrounding Taylor Swift’s romance with Travis Kelce, the Chief’s tight end, makes it slightly appealing because the cameras love to show Taylor’s reactions while she’s in a private luxury box. “What’s Taylor doing? What’s she wearing?”, that kind of thing…

Whoever wins these games will meet at the Super Bowl on February 11.

Still rehabbing my poor little leg, I can’t do much walking or a whole lot of other physical activity until the sutures are removed, so I’m probably going to do nothing but watch football on Sunday.

Go LIONS!

And the winner is…XX or XY?

I’m bursting to tell!

Don’t hate but here’s a truth; when my son was in elementary school, I’d pick him up every day after school and we’d walk home while he chattered away about what what happened during the day, what he learned, and sometimes this:

“Mom, Mom, guess what? I have EXTRA CREDIT!”

Yes, my Angel Boy looked at additional schoolwork as a gift —and why would anyone want to rain on his bliss?

Always the overachiever, it’s not surprising that he performed over and above in this category too, because he and DIL are having a…

wait for it

wait for it

oh, I can’t wait.

IT’S A …

BOY!!!

Can you hear me screaming for joy?

DIL’s already referring to him as Angel Boy 2.0…

The first thing this yummy grandmummy did was to rush out and SHOP! Next on the list is painting the nursery a lovely vintage yellow. I’ll decorate with an animal/nautical theme.

Lots of animals, of course.

Nautical + animals but NOT a Noah’s Ark vibe.

Of course lots of love.

Cos that’s really all you need.

All you need is love.

I Fell Down and a Baby Popped Out.

In that order, but it took a whole day to achieve my life’s greatest accomplishment.

In 1981, March 23 fell on a Monday.

This year, my Angel Boy is in New York at a conference at NYU. My BABY boy is not a baby anymore. That’s a hard concept to grasp…

The day before…
I took my dogs, Beowulf and Sabrina, out for an early morning walk.

My mom was going to come over around noon and take me shopping — see, that’s where I get it from!

It was a full week past my due date and those pesky Braxton Hicks contractions were terrifying me on a daily basis. My mom was the head RN of Women’s Surgical at a local hospital. She thought a bit of retail therapy (see what I mean?) would take my mind off of that discomfort.

At that time, my son’s dad and I lived in an older part of San Diego; Hillcrest. The sidewalks were deteriorated with huge cracks and fissures.

With my big belly full of Angel Boy blocking my view, I tripped and fell — not hard — but with sixty extra pounds on my normally one hundred pound frame, I was more than a little ungainly.

I remember being super embarrassed for anyone to watch my feeble attempts to get up. Luckily, no one was out that early. I leaned on Beowulf (one-hundred-pounds of Akita/Husky/Wolf) who stood about thirty inches at his shoulders, and he was a sturdy support to help me up.

I continued walking home — just a few blocks — and didn’t think much about my fall, but I did tell my mom when she picked me up to go to the mall.

She knew everything there was to know about birthin’ babies.

She reminded me that she had told me a zillion times not to go walking alone this late in pregnancy, but I replied like I always did, “Blah, blah, blah…I’m not listening to a word you say.”

We stopped at a lingerie shop and she bought me a beautiful rosebud sprigged shortie nightgown.

As we were leaving the store, I whispered to her, “Mom, I think I wet my pants.”

(Dumb me, who had read every single book ever written about pregnancy and childbirth, didn’t comprehend what had happened.)

My mom instantly went into what we always called her “nursey” mode.

Quizzing me non-stop about any other symptoms in a very calm voice, we cut short our shopping day (darn) and drove home.

I don’t want to be too gross here; let’s just say other things were leaking out of me, too…

Suddenly, those Braxton Hicks contractions became the real thing.

I called my doctor. It was time.

All during my pregnancy, I had planned to deliver at home, au natural, with my mom as midwife.

Toward the end, it became obvious that my Angel Boy was too big for that to be possible.

I hate hospitals.

I didn’t want that atmosphere to be the first memories implanted in my baby’s precious brain. With reluctance, I agreed that his health was more important than my hippie chick desires, and hubs, mom, and I all went to the hospital.

The doc examined me, concluded that the fall had merely torn the amniotic sac and the potential for introducing bacteria was a concern, so I agreed to let him completely puncture it to speed up the process.

And oh yes, speed it up it did. The mild contractions intensified.

Other than the unrelenting pain, which didn’t respond to that stupid Lamaze class training, I remember my son’s dad watching “Patton” on the wall TV in the birthing room.

I will always hate him for that.

After being in labor all night, my mom and the doc had a consultation.

Apparently, my baby had a head the size of Plymouth Rock and it was stuck.

It just wouldn’t come out.

I was so upset I couldn’t stop crying.

I had failed my first test as a mom.

So…at 9:42 a.m. on Monday, March 23, 1981, I had an emergency Caesarean Section.

I was wide awake and watched it all.

In the end, I guess it didn’t really matter how my Angel Boy got here.

He was beautiful and healthy; 8 1/2 pounds and 21 inches. He scored a 9 on the Apgar Scale; a high achiever from the beginning!

Happy 33rd birthday, Professor Angel Boy!

happyballoons

babyJ
sailorsuitJ
batJteddybearJ

I Fell Down and a Baby Popped Out.

In that order, but it took a whole day to achieve my life’s greatest accomplishment.

In 1981, March 23 fell on a Monday.

The day before…
I took my dogs, Beowulf and Sabrina, out for an early morning walk.

My mom was going to come over around noon and take me shopping — see, that’s where I get it from!

It was a full week past my due date and those pesky Braxton Hicks contractions were terrifying me on a daily basis. My mom was the head RN of Women’s Surgical at a local hospital. She thought a bit of retail therapy (see what I mean?) would take my mind off of that discomfort.

At that time, my son’s dad and I lived in an older part of San Diego; Hillcrest. The sidewalks were deteriorated with huge cracks and fissures.

With my big belly full of Angel Boy blocking my view, I tripped and fell — not hard — but with sixty extra pounds on my normally one hundred pound frame, I was more than a little ungainly.

I remember being super embarrassed for anyone to watch my feeble attempts to get up. Luckily, no one was out that early. I leaned on Beowulf (one-hundred-pounds of Akita/Husky/Wolf) who stood about thirty inches at his shoulders, and he was a sturdy support to help me up.

I continued walking home — just a few blocks — and didn’t think much about my fall, but I did tell my mom when she picked me up to go to the mall.

She knew everything there was to know about birthin’ babies.

She reminded me that she had told me a zillion times not to go walking alone this late in pregnancy, but I replied like I always did, “Blah, blah, blah…I’m not listening to a word you say.”

We stopped at a lingerie shop and she bought me a beautiful rosebud sprigged shortie nightgown.

As we were leaving the store, I whispered to her, “Mom, I think I wet my pants.”

(Dumb me, who had read every single book ever written about pregnancy and childbirth, didn’t comprehend what had happened.)

My mom instantly went into what we always called her “nursey” mode.

Quizzing me non-stop about any other symptoms in a very calm voice, we cut short our shopping day (darn) and drove home.

I don’t want to be too gross here; let’s just say other things were leaking out of me, too…

Suddenly, those Braxton Hicks contractions became the real thing.

I called my doctor. It was time.

All during my pregnancy, I had planned to deliver at home, au natural, with my mom as midwife.

Toward the end, it became obvious that my Angel Boy was too big for that to be possible.

I hate hospitals.

I didn’t want that atmosphere to be the first memories implanted in my baby’s precious brain. With reluctance, I agreed that his health was more important than my hippie chick desires, and hubs, mom, and I all went to the hospital.

The doc examined me, concluded that the fall had merely torn the amniotic sac and the potential for introducing bacteria was a concern, so I agreed to let him completely puncture it to speed up the process.

And oh yes, speed it up it did. The mild contractions intensified.

Other than the unrelenting pain, which didn’t respond to that stupid Lamaze class training, I remember my son’s dad watching “Patton” on the wall TV in the birthing room.

I will always hate him for that.

After being in labor all night, my mom and the doc had a consultation.

Apparently, my baby had a head the size of Plymouth Rock and it was stuck.

It just wouldn’t come out.

I was so upset I couldn’t stop crying.

I had failed my first test as a mom.

So…at 9:42 a.m. on Monday, March 23, 1981, I had an emergency Caesarean Section.

I was wide awake and watched it all.

In the end, I guess it didn’t really matter how my Angel Boy got here.

He was beautiful and healthy; 8 1/2 pounds and 21 inches. He scored a 9 on the Apgar Scale; a high achiever from the beginning!

Happy 33rd birthday, Professor Angel Boy!

happyballoons

babyJ
sailorsuitJ
batJteddybearJ